Editorial: El País

• Since October, about 600 people with ALS have died in Spain without receiving help, despite the unanimous approval of the ALS Law.
• The state committed to guaranteeing financial resources, which are currently being borne by the families of the patients.
• The care costs for the approximately 4,000 citizens currently diagnosed with ALS are estimated at between 184 and 230 million euros annually.
• The law has not been activated due to lack of budget and disputes between administrations.
• The law was approved without an economic memory detailing the implementation, sources of funding, and its impact on public income and expenditure.
• The costs of adapting housing or car, displacement costs or physiotherapists, are almost impossible to assume for an average family.
• The Ministry of Health seems to have found a temporary solution to begin processing the aid.

Conclusion: Spanish society shares the frustration at the lack of effective activation of the ALS Law. Providing speedy solutions to everyday and urgent problems is crucial to maintain citizens' trust in their political class.

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